Jacob, Our 2 Pound Miracle

7/21/2015

I was born with gastroschisis which led to some pretty severe issues when I was 25. I had a pretty massive surgery to rearrange some things. But the doctors and surgeons had cleared us to try and have a baby and said it would cause no problems with pregnancy.

We found out we were expecting in February and Jacob was due on October 15, 2014. I went into preterm labor at 24w5d. I was transported to a hospital with a high level NICU. 8 days later Jacob was born at 26 weeks gestation (14 weeks early). He weighed 2lb on the dot and was 14 inches long.

Jacob was automatically intubated and put on a regular ventilator. On day 3 Jacob was diagnosed with a pulmonary hemorrhage and was put on a oscillator which is a step above a conventional vent.

He was on this for 10 days the first time. The same day they done a Ultrasound of his brain because of a low blood count. The found that Jacob had a bilateral grade 4 IVH. He had a ultrasound to follow this every 2 weeks the entire time he was in the NICU.

The 2nd Ultrasound told that Jacob had some PVL changes. This was pretty devastating for us because that meant his chances of having severe problems when he got older were greater than 90%. Over time the blood decreased and there were no other changes such as PVL or fluid build up (hydrocephalus).

A bleed as severe as Jacobs and with the changes in the brain could mean problems down the road. It could be something as simple as a speech problem or something has severe has Cerebral Palsy. Not long after the first cranial ultrasound he was also diagnosed with a PDL. Which is a valve in the heart that is suppose to close after birth but didn't. The monitored this but eventually got small enough that they were not worried about it. No problems with that other than a small heart murmur that comes and goes.

When Jacob was 8 weeks old he got very sick (while still in the hospital) he had a severe lung infection. He was actually put back on a ventilator again. After the cultures came back they were positive for MRSA and E.Coli in his lungs. After 14 days of pretty strong antibiotics he was on the mend.

Jacob spent 96 days in the NICU and come out with pretty severe diagnosis. He will be 1 in a week and a half and so far shows no signs of CP or any other condition from the brain bleed. He is crawling, trying to walk, pulling himself to stands, talking (mama, bye bye) and is the happiest baby we have honestly ever seen! We are very thankful for all our NICU staff. Most of all we are thankful that God was with (is still with) Jacob every day he was there. Thankful that God was with every hand that touched him!

Our little 2 pound miracle is the light of our lives!

Namrata Chand

12/2/2018 06:20:53 pm

What a remarkable story!! We are going through the nightmare now, so was looking for hope. How is Jacob doing now? He is gorgeous!

Daniel

5/9/2019 05:13:35 pm

Im now going tru it with my baby im kind of scare hows your baby doing?

Derrick

6/2/2019 10:43:01 pm

We are going thru the same thing with our child as well. He was born at 24 weeks 2 days on May 20th 2019. He was hypoxic with the cors around his neck. He was doing really well until they found on the ultrasound a bleed in an unusual spot close to the thalamus region of the brain. Then 2 days later he had a perforation in his bowels were he had to undergo surgery to correct it.

We are praying for God's grace and miracle story such as yours. Thank you for sharing and we pray for your child as well Daniel.

Grace

6/4/2019 10:46:53 am

Going through same situation I had a 24 week baby and had grade 4 bleeding n doctors already told me it’s Sever where he has a chance to have many delays or CP I’m praying for him that he has same outcome as ur baby .

Teresa

6/25/2019 10:17:11 am

We are going through this as well. Grandson came at 23 weeks 5 days on 6/23. Has grade 2 bleed on one side and grade 4 on the other. It is just heart breaking for my daughter and husband to go through this. We are all praying so hard for this little one hoping for a miracle!

Aaron Gray

1/26/2021 05:40:19 pm

How is he doing my son is just going through there saying level 2 too 3 bleed on the brain
another scan tomorrow I'm scared, looking for insp5

Jas

12/1/2019 09:32:29 pm

My family is going through this now, any advice and how are you babies doing ?

monica

2/21/2021 10:30:25 am

Hi my baby had the same issue before. I delivered him last september. He faced a lot of problems inside nicu along with stage 3 brain clot. Evey scan and doctor’s call is like nightmare to me. He is 5mos now and his ok. All i can say is have faith in God keep on praying. God will answer your prayer as long as you believe in him. His the great healer. Surrender your baby to lord God, let him do his plan. Always remember this. God give us some problems so we will remember him that he is almighty and he can change everything. He just want to know despite of your problems you still have faith in him. Godbless you all.

Alisha Rai

10/18/2020 10:19:11 pm

How is your son doing now?

Teresa Kelly

11/29/2019 10:44:28 am

God blessed you with a miracle for your precious baby! My daughter & Son InLaw list their first baby born at 26 wks only weighting 15 ozs. He was over ½ the size he should have been. He died at 4 wks old off kidney failure. They went on to have 2 heathy daughters with IVF. With less than a 1% change she could get pregnant, she did. This baby is a boy & so thrilled to be given this gift. At 28 wks, mom did not feel him move for several hours & went to be monitored. All seemed fine then his heartbeat took a dive. He was delivery emergency c section. He had several issues including acid build up in his blood, bilateral level 3 brain bleeds. We were told he wasn’t going to survive. Had him baptized surrounded by family. A few hrs later he started to improve to his drs astonishment! He wasn’t moving anything, arms legs eyes, just peeing. He had a blank stare in his eyes & not blinking his first 48 hrs. He started blinking then moved his eyes right & left to his dads voice.
After baptism his arms & legs started having some more normal type movements giving us great hope. He is on CPAP at 6 days old. New brain scans today & KKG to check his brain for improvement. We are praying hard for a miracle!
God bless you & your family🙏❤️

Harley

12/1/2019 09:34:25 pm

What a miracle story.. so nice reading this. Wishing you all the positive. So happy for your family. How is baby boy Jacob doing?

Shantelle

3/4/2020 01:35:17 am

Our little girl was born 24 weeks exactly 8/1/20 and is now 33 weeks gestation 9 weeks earth side. She had grade 1/2 and grade 3/4 brain bleeds and the clotting has since then drained and ventricles reduced in size. We are praying she isn't limited developmentally. And have a strong sense of hope as she is after all our little baby girl. She has had 4 blood transfusions and so far two diaretics due to adema fluid retention. She is very altert and beautiful. The cpap makes me sad as it is shaping her head unusual but have been told that this will change as she grows older.

Brian

3/11/2020 11:34:54 pm

What is updates from everyone?

Cherlie

3/24/2020 12:09:01 pm

We are going through the same the same thing. Our baby girl was 3/20/20, 22 weeks and 6 days. She has grade 4 and 1 bleeding in her brain 🧠, and fluid build up in her lung. The Dr outcome is pretty scary but we’re praying. The Lord is a miracle worker.

Efrain Ramos

3/21/2020 07:34:14 am

Hello! Glad to hear he is doing good. My wife had a baby on 12-12-19. He was born 25 weeks 5 days. We spent 99 days in the NICU he had a grade 4 bleed on the right side which is still there but did not progress. He is acting like a regular baby. Doctors say he can be disabled or just a slower process at learning but no one knows except the man above what he has planned for you. We are hoping for the best but will be ready for anything! For those out there that are going through the life of the NICU it gets better just a long process . You got this!

3/24/2020 12:10:47 pm

Thank You, I do believe that. We will lift each other in prayer 🙏🏾

Melissa Hoskin

5/6/2020 10:00:46 am

God knows exactly what you need, and I needed to read Jacob's story😭😍! My son Josiah was born April 26, 2020 @ 34wks 2days 8lbs 7ozs. Last night they found a grade 4 bleed from MRI! I trust God and I'm believing him for a miracle for our son in Jesus name!

Lucy

11/30/2020 01:46:44 pm

Going through the same thing, our boy was born a few weeks ago and had Grade 3 and Grade 4 bleeds which resulted in him needing a shunt because of the build up of fluid. Good to see your baby doing so well, stories like this give us so much hope.

11/30/2020 03:28:29 pm

Stay strong and continue to give your baby plenty of love and whatever therapy they need. My son is almost 9 months now and 5 1/2 corrected

Bridgett

12/11/2020 01:04:28 am

My daughter was born 22weeks and 4 days. She's now 25 weeks but, going through the same thing. All I can do is 🙏 pray, be strong and have faith that she will be fine. My daughter is a fighter and I am with her encouraging her on 100%. Thank you for you story it gives me hope.

La'Viana Vann link

3/14/2021 08:33:26 pm

Hi my name is Laviana I had my daughter February 22nd when I start to have contractions I went to the hospital early that day I thought I was 23weeks 6days but today the doctor telling my daughter looks like she was younger like 22 weeks & a couple days my daughter been fighting since she came out she is now 26 weeks gestational she have stage 4 and stage 3 bleeding on her brain I have faith and I continue to pray the doctors ask me plenty of times do I want to continue her care like who wouldn’t want they child to continue to fight ? It’s very hard but I continue to pray and seeing her fight everyday makes me stronger I hope I can talk to someone .

New

5/6/2021 11:47:20 pm

I am going through it right now also. It's heartbreaking to hear news that my baby has grade 4 bleeds. Hearing and reading stories give some kind of hope for my little girl. I'm here if anytime wants to talk or provide any words of advice.

Maria Gallegos

12/8/2021 05:23:22 pm

I am going to the same thing and told me the same thing to my daughter i had her at 23 weeks and 4 days she was 1lb and 4.3 oz on November 26 what did you do and how was your outcome how is ur baby

monica silang

5/7/2021 12:00:53 am

Keep your faith Guys. God can do miracle. My son had stage 3 brain bleed. Right now his doing great. We enroll him in early intervention theraphy to avoid any issues on his motor skills. His 5 months now and his doing all the milestone of a normal baby. brain is perfect also. I believe because of CME theraphy it helps him a lot to restore the damage of the bleed. And also tru the help of the above. Nothing is imposible dear brother and sister. I know it is hard to see our little one like that but surely our baby will be ok. make sure once the baby came put ib nicu shower him with lots of love, talk to baby always so the brain will grow. Goodluck new parents! take it easy God is in control!!!

5/7/2021 12:08:16 am

Thanks Monica. I am always hoping for a miracle. And thanks for letting me know about early intervention. How is your child doing now?

Mariam S

10/13/2021 05:19:03 am

Im going through the same right now, i had twin boys 1 passed away and the second one under a serious critical condition. With a severe brain bleeding grade 4 and the brain started to get damaged as well. And so many other health problems like the oxygen is not reaching to some parts of the body.
Your story gave me hope.

Kelly

1/14/2022 06:56:04 pm

Hi Miriam,

Same experience for us - twins with baby Andrew passing the day after delivery and Peter is 8 days old and sick, has a grade 3 and grade 4 IVH. How are you doing now?

Jamie Conner

11/9/2021 07:40:59 am

My daughter is going through this right now. She had twin boys at 25 weeks, My grandson Carter did not make it. My other grandson Callaway is fighting but has a level 4 brain bleed as off last Friday and did a rescan this past Monday because doctors were not convinced it was that severe. He is also dealing with the getting his GI tube in enough, they may be a little hole in the intestines. I pray for all your babies that God heals them all. I pray for all the parents that have to worry, I also pray for all the grandparents that ache for their child and their grandbaby. God it good and creates miracles, I have seen them. Thank you for your stores, it helped me and I will share this site with my daughter.

Indu

1/15/2022 04:15:51 pm

We are going through the same thing my daughter is born at 25 weeks 4 days gestational she is 2 lbs and fighting.. I don’t know who to talk to they say that she has grade 3 and 4 blood leak we are so scared ! She is a fighter..

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Jacob, Our 2 Pound Miracle

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